Hello Raleigh Celiac Support Group Members,

September 20, 2018, Meeting Announcement:
Our next meeting will be on Thursday, September 20, 2018, at Rex Hospital. The exact meeting room is not known 
at this time. Please try to meet at the Patient Entrance a little before 7:00 PM so we can go as a group with a
hospital employee guide to the meeting room.

The topic for the next meeting will be presented by our guest speaker Angie Almond, MEd, RD, LDN, FAND.  Angie works at the Department of Paediatric Gastroenterology - GLADD - Gluten Allergy Digestive Disorders Program, Wake Health, in Winston -Salem, NC. This will be a very informative program for everyone.

Imagine That Gluten Free

Imagine That Gluten Free Bakery Order form:

Please return your orders to me no later than Friday September 14, 2018.

The Products available are:


All Bread Loaves_________ $7/ea. 

       Classic White_________Quantity______

       Country Sunflower_____Quantity______

        Hearty Grain__________Quantity______


Kaiser Rolls/ Hamburger Buns

         $12/ 12 pack ____________Quantity_____ 

          $6/ 6pack_______________Quantity__ ___


Dinner Rolls

          $4/ 7/pack Dinner Rolls_____Quantity ____


12" Baguette

$5/ ea12" Baguette________Quantity___


Pizza Crusts 

$7 /10" Pizza Crusts 2-packs__Quantity______


Pita Rounds

$6 /6" Pita Rounds 6 per bag   _Quantity_____


Chocolate Chip Cookies

Chocolate Chip Cookies $6/ 8-packs _Quantity______


$6 / Muffins 4-packs 

          Lemon Raspberry________Quantity____

          Blueberry_______________Quanti ty______

          Apple Cinnamon__________Quantity____ 



Again, if you are interested in purchasing any of Dave’s Imagine That Gluten Free bakery products please reply to me no later than Friday, September 14, 2018, indicating the product, and quantity of each product, you wish to purchase. I will email confirmation of your order in the order it was received. If you do not receive a confirmation with your order before the deadline please contact me again.



Trevor

J.Trevor Bower, C.P. Ag.,Ret.
trevorbower72@gmail.com
112 Truss Way
Durham, NC 27704
515-537-6255
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July 19, 2018 Meeting,

We have a meeting this month on July 19, 2018, at Rex Hospital starting at 7:00 PM.  As those of you that attended the May meeting found out Rex Hospital is continuing to do renovations.  To our surprise, we lost our meeting room next to the cafeteria. We held the meeting in May in a large meeting room in the Cancer Center. This month we will not know what meeting space available until two days before our scheduled meeting. I will send out an additional meeting notice as soon as I find out the meeting location. Stay alert for the change.

This month we are fortunate to have two dieticians as guest speakers at our meeting. Kelsie Peters from UNC Health will be speaking to us about meeting special dietary requirements in a commercial facility.  Leslie Gaillard is a Registered Dietician/Nutritionist in private practice will talk to us about personal dietary counseling. 

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The Raleigh Celiac Support Group held a family get together on June 20, 2018.

We met at Greg Brelinsky’s Rossalinis Big Family Pizza Parlor. 


We started about 7:00 pm to enjoy some very fine gluten-free pizza and other food. For those of you not familiar with Rossalinis Big Family Pizza here is a link to the website and menu. 

http://rosalinispizza.com/menu/


Rossalinis Big Family Pizza is located at:


6210 Rogers Road, Rolesville, NC


I must say a good time was had by all that attended. We'll have to do this again sometime soon.

________________________________________________________________


Our last Regular Meeting was May 17, 2018. 
UNC Rex Healthcare
4420 Lake Boone Trail, Raleigh, NC 27607
The meeting was moved to a new location in the hospital due to extensive remodeling. We met in a conference room that is part of the cancer department.
Be sure to check for the meeting room we will use next time as the remodeling may take 6 months.

Our May 17, meeting  topic and summary is below:
We had a very interesting meeting on Thursday evening, May 17, 2018. Our guest speaker was Debbie Orol, RN, Holistic Health Coach. Her topic was Healing Your Gut: Beyond Gluten Free.

Debbie focused on five key items:

  1. The added nutritional properties of whole grains in the diet are superior to the refined starch portion of the milled grain often found in prepackaged grains and flour. Some of the grains she recommended were: amaranth, buckwheat, wild rice, quinoa, millet, teff, and brown rice. Debbie also recommended rotating the grains in your diet.


  1. Decrease inflammation by decreasing the consumption of inflammatory foods. Those foods are high in sugar, heavily processed to allow them to easily convert into sugars, a high glycemic index. Dairy products can be inflammatory to some people. Increase Omega 3 rich foods: cold water fish - salmon, sardines, mackerel, and nuts.  Debbie favored consumption of walnuts and flax seed. Grass fed beef was also one of her recommendations. 


3.  Increase probiotic rich foods: fermented vegetables, kefir, miso, and kumbacha.


4.  Eat slowly in a calm environment.


5.  Eat enzyme rich foods, locally grown foods, raw or lightly cooked fruits and vegetables, and

     consider supplementation with a good digestive enzyme.


There was a good discussion between the audience and speaker.


We also discussed the possibility of having a meeting/ get together next month at a restaurant. Rosalini’s Pizza and subs were one of the choices.  I’ll be checking with the owner on a suitable date and time. When that is confirmed I will send out additional information.


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April 26, 2018, Updated location listing for Imagine That Gluten Free Bakery Products from Dave Gardner.

Raleigh

Mellow Mushroom

Standard Foods (probably going out of business soon)

Village Deli Cameron Village

Village Deli Lake Boone Trail

Winstons

Café Sola

Weaver St. will have a downtown location open by the end of the year.


Wake Forest

Village Deli 

Mellow Mushroom


Cary

Ruckus Pizza Tryon Rd.

Ruckus Pizza Harrison Ave.

Mellow Mushroom


Apex

Daniels


Durham

Bulldega

Kings Red and White

Durham Co-op Market

Geer St. Garden

Mellow Mushroom

Primal

American Meltdown

Durham Farmers Market

Bullcity Burgers


Chapel Hill

Mellow Mushroom

Root Cellar

Merritts

Weaver St. Market Southern Village

The Loop

Bagel Bar

The Pig


Carrboro

Weaver St. Market

Neals Deli

Elmos Diner 

Carrboro Farmers Market


Hillsborough

Weaver St. Market

Bella Bean Organics


Pittsboro

Phoenix Bakery

Virlies Grill

Mod Deli

The Root Cellar


Morrisville

Ruckus Pizza 3

Village Deli


Saxapahaw

The General Store


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Meeting Notes, March 15, 2018:

Our meeting on March 15, 2018 had one guest speaker, Hadassah Patterson.  Hadassah has started a gluten free commercial bakery Triangle Gluten-Free, LLC selling “Oven Lovies.” Hadassah told us how she got started and her current marketing plans. The products she currently sells are: Strawberry Cheesecake, Apple Pies Tart, Sweet Potato Tart, Chocolate Cake, Yellow Cake, and Biscuits.  She brought some delicious samples for us to eat. 


Thank you Hadassah.


Contact information for Hadassah:

 Triangle Gluten-Free, LLC

Telephone 9119-225-9582

http://triangleglutenfree.com/


After Haddassah’s presentation we had an open discussion about dietary issues we faced as celiacs. We also briefly discussed future meeting topics that would be of interest to the group. If you have any ideas please send them to Pat or me.


Henry Caldwell from Whole Foods was not able to attend our meeting.


Our next meeting will be on May 17,  2018.  The guest speaker will be Debbie Oral.  Debbie will discuss “Keeping a Clean Healthy Gut.”



Raleigh Celiac Support Group Facebook Site:


To join our Raleigh Celiac Support Group Facebook Site, please join our support group first. Look at our Contact Us on the Home Page for contact information. You can contact Pat Berger (pjberger38@gmail.com) or Trevor Bower (trevorbower72@gmail.com) to join our support group that meets every other month at Rex Hospital in Raleigh. You will then be added to our emailing list for news, events and meetings.


After joining our support group, please feel free to join our Facebook group, “Raleigh Celiac Support Group.” Our Facebook site is becoming more active as members discuss items of interest concerning Celiac Disease.


The closed Facebook site is only for members of the Raleigh Celiac Support Group. If you are a member of the Raleigh Celiac Support Group you can contact Beth Fetvedt (fetvedt@hotmail.com) or Trevor Bower to join our Facebook site. Or go to the site by searching for it on Facebook and ask to join.


Gluten Free Bakery Products:


If you are interested in the best Gluten Free Bakery Products, you can order them for delivery at the next meeting. Also, we usually send out a reminder to order the baked goods when we notify you of upcoming support meetings via email. If you can't wait until the next meeting, here are the locations where Imagine That Gluten Free products are available.



Meeting Notes from Calendar Year 2017 


November 16, 2017 Meeting Notes

Our November meeting program featured Speakers, Henry Caldwell and Lee Tobin, from the Gluten Free Bakehouse.  Henry and Lee brought us frozen samples to evaluate as part of a possible future release frozen dough for a number of new products lines from Whole Foods.


September 21, 2017 Meeting Notes

Pat Berger discussed the new National Celiac Association, (NCA), we are now members of since it took over the organization originally based out of Seward, Nebraska. The NCA has greater possibilities and influence nation wide. There are a number options for membership. We, Raleigh Celiac Group,  are joining as a Resource Team membership  since we are really a small group, are not incorporated, not registered with the IRS as a 501c3 nonprofit and are not collecting dues or selling any products. The NCA publishes a magazine that currently comes out three times a year for members.  Members also receive a monthly e-newsltter. Individual full memberships are $30.00 per year.  Magazine only memberships are $19.00 per year.

Beth Fetvedt presented the new Facebook site she has developed. It is a closed Facebook website just for the group. I think this will a great opportunity for our group to exchange information, recipes, hints, good places to find gluten free food and many more ideas. This group can also be a good source of information for guest speakers and expert resources for our questions.  Again, the group is only  for members of Raleigh Celiac Support Group Members. Beth will be contacting you about joining as she is the administrator of the group.

We briefly discussed our last meeting and the presentation by Dr. Zickmann. Some of the members had additional questions about dosage amounts, how soon before or after eating food suspected having gluten contamination. There was also a question if the Gliadin X was a good option if you went out and knowingly ate food containing gluten like a hamburger or pasta. The consenses was the Gliadin was useful for an accidental cross contamination incident. Another question was asked about any reactions people might observe after taking the medication. Further checking on the advocacy of Gliadin X is needed. If any of you have questions regarding Gliadin X please send them to me and I'll try to compile them and obtain answers for you.

Our next meeting will be on November 16, 2017. We are working with Whole Foods Gluten Free Bakery to be presenting new products at the November meeting 

July 2017 Meeting Notes

Our July meeting was with Dr. Zickmann, via Skype, was very informative.  With background in the fields of medicine and dentistry, he developed Gliadin X, an enzyme that breaks down gluten before it reaches the small intestine.
Gliadin X is not a cure for CD.  However, when taken prior to eating, his research shows it does allow the ingestion of gluten containing foods without ill effects. 


PRODUCT NEWS:  

Dave Gardner's bakery products are now available at:

 Raleigh

Mellow Mushroom

Standard Foods

Village Deli Cameron Village

Village Deli Lake Boone Trail

Winstons

Poppyseed Market

Café Sola


Wake Forest

Euro Café

Village Deli 

Mellow Mushroom


Cary

Ruckus Pizza Tryon Rd.

Ruckus Pizza Harrison Ave.

Mellow Mushroom


Apex

Daniels


Durham

Bulldega

Kings Red and White

Durham Co-op Market

Geer St. Garden

Mellow Mushroom

Primal

Roses 

Porchetta

American Meltdown

Durham Farmers Market


Chapel Hill

Sandwhich

Mellow Mushroom

Root Cellar

Merritts

Caramel Market

Weaver St. Market Southern Village

The Loop


Carrboro

Weaver St. Market

Neals Deli

Elmos Diner 

Johnnys Gone Fishin 


Hillsborough

Weaver St. Market

Bella Bean Organics


Pittsboro

Phoenix Bakery

Virlies Grill


Morrisville

Ruckus Pizza

Village Deli


Saxapahaw

The General Store


Fayetteville

Mellow Mushroom


Greenville 

Mellow Mushroom


Charlotte

Back Yard Produce


 Give them a try - they are excellent! 

 Pizza and Subs:
Making a hit with GF Pizza is "Rosalini's Pizza and Subs," 6210 Rogers Rd., Rolesville.  Tel: 919-453-1466. Website: www.RosalinisPizza.com  Owners are GF knowledgeable and have dedicated space, utensils, and baking needs for GF food preparation. Feedback is very positive. 

The Raleigh Celiac Support Group is a registered member of the NCA, National Celiac Association which is the American Support Association for those of us with Celiac Disease.

We meet every 2nd month (see calendar for dates) in the cafeteria's Private Dining Room at Rex Hospital on Blue Ridge Road, Raleigh.

At our meetings, our Group Leader, Patricia Berger, organizes speakers, nutritionists and local gluten free food suppliers to come and talk, educate and feed us!

The website for the Celiac Support Association is an excellent source of information about celiac disease, the symptoms, the legalities etc.  Check it out at http://www.csaceliacs.info

On this website we focus on local support. We will give details of who is presenting at our bi-monthly meetings.  We list restaurants that our members have recommended, we tell you about gluten free events that are happening in our area and help all of us live an easier, gluten free life in Raleigh.